Little Ronnie was diagnosed with with a rare blood condition just days before his first birthday
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match(Image: Supplied)
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A young Everton fan who was diagnosed with a rare and life-threatening blood condition just days before his first birthday has undergone a life-saving stem cell transplant. Ronnie, now aged 18-months-old, captured the hearts of football fans across Merseyside when Everton FC highlighted his fight against severe aplastic anaemia during the Merseyside derby in April.
His mum, Laura, from Wirral, had launched the Register4Ronnie campaign alongside blood cancer charity Anthony Nolan in a desperate bid to find a suitable stem cell donor for her little boy.
The condition, which prevents the bone marrow from producing enough new blood cells for the body to function normally, can be fatal without treatment. A stem cell transplant offered Ronnie his best chance of a cure and long-term survival.
The appeal encouraged supporters to join the Anthony Nolan stem cell register and has since directly led to around 1,000 new donor applicants. But while the campaign sparked an outpouring of support, Laura and her family were left facing an agonising wait to discover whether a suitable match could be found.
Laura said they had initially been hopeful of finding a perfect 10-out-of-10 donor match. However, in May, they were told Ronnie's genetics meant this was unlikely, and doctors began considering alternative treatment options.
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match(Image: Supplied)
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After potential nine-out-of-10 matches proved unsuitable, the family faced the prospect of immunotherapy to keep Ronnie stable until a suitable donor could be found.
Then, in an extraordinary turn of events, a perfect match emerged from an American donor in his 20s.
Laura said the news came as the family prepared for Ronnie to begin immunotherapy, with his consultant arriving to tell them the treatment had been cancelled because a 10-out-of-10 match had been found.
She said: "Even now I'm getting emotional about it. To go from thinking we'd get a match to not, to not being able to do the transplant, then a 10 out of 10 coming out of nowhere was an emotional rollercoaster."
Ronnie underwent his transplant on August 4, and his family have since received encouraging news about his recovery.
Laura said: "We found out in mid-June and Ronnie was booked in for a transplant on August 4… and he absolutely smashed it!"
Doctors had warned the family that Ronnie could spend at least four to six weeks in hospital, require a feeding tube, lose his hair and become extremely unwell during treatment.
Instead, Laura said he had made remarkable progress, getting back on his feet every day within four weeks of the transplant and avoiding even a spike in temperature.
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match
18-month-old Ronnie has been given a life-saving stem cell transplant after the family found him a perfect match(Image: Supplied)
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She said: "He's absolutely smashed it, and the good news is he's now 100% at donor cells and is producing his own cells."
Ronnie was discharged from hospital on September 4 after ringing the traditional end-of-treatment bell, wearing his Everton kit for the occasion. Although his family are celebrating the progress he has made, he remains highly vulnerable to infection and must continue living in isolation until next year.
Laura said: "We were told Ronnie would be in hospital for a minimum of four to six weeks, that he’d need a feeding tube because he would go off his food, that he would lose his hair and he would be very poorly and lethargic, but literally four weeks out from the transplant he was up on his feet every day and didn't even spike a temperature!
"He was discharged after ringing the bell on September 4 - and obviously he had to have his Everton kit on for that day – but we’re still in isolation until next year because Ronnie is still a high-risk, vulnerable person."
The family have since enjoyed four weeks at home together, the longest stretch they have spent there since Ronnie's health problems began in February.
Ronnie with older brother Regan
Ronnie with older brother Regan(Image: UGC)
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For Laura, even the simplest moments have taken on a new meaning after months dominated by hospital visits and treatment.
She said: "It's the little things that you appreciate, like as soon as we got home we took him for a walk, and that was emotional because he hadn't stepped out of that hospital room in Manchester for four weeks."
Ronnie's eight-year-old brother, Regan, has also had to adapt to the family's circumstances, with restrictions on visitors and outings limiting the time he can spend with others to protect his younger brother.
Laura said: "It's still hard because he's at the age now where I want to take him to the zoo, to soft play or to swimming, but he can't do all those things yet.
"The grandparents haven't been allowed to see Ronnie in God knows how long, and Christmas is going to be different this year for us. Friends and family won't be allowed to see Ronnie and he won't be able to go and see Santa.
"His development has also been affected because he's not been socialising with other kids…but we know he will get there."
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Laura said she would always be grateful to Everton, Liverpool supporters and Anthony Nolan for the support they had shown throughout Ronnie's journey.
Rowena Bentley, head of programme and community recruitment at Anthony Nolan, said the charity was delighted to hear how well Ronnie was doing following his transplant.
Ronnie, from Wirral, was diagnosed with the rare blood disorder aplastic anaemia just before his first birthday
Ronnie, from Wirral, was diagnosed with the rare blood disorder aplastic anaemia just before his first birthday(Image: UGC)
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She said: "Every day, Anthony Nolan is able to offer four people a second chance at life because a stranger has chosen to join the stem cell register.
"Ronnie’s story is a powerful reminder of the life-changing difference one person can make, and the support shown by Everton fans in April reflects the incredible spirit of the club and the city of Liverpool."
The charity is now encouraging more young people to sign up to the register, particularly men aged between 16 and 30. Although only 14% of the register is made up of young men, they account for more than half of those called upon to donate.
Rowena added: "If you’re aged 16–30 and haven’t joined the stem cell register yet, please consider taking that step today.
"It only takes a few minutes, a cheek swab and posting an envelope back to us, but it could give someone a second chance at life."
To find out more about Anthony Nolan and the Register4Ronnie campaign to boost numbers on the national stem cell donor list, visithttps://www.anthonynolan.org/register4ronnie
If you’re unable to join the register, please considerdonating to support Anthony Nolan’s vital work at anthonynolan.org