Rupert Smith was recently diagnosed with Alternating Hemiplegia of Childhood (AHC) - an extremely rare, and life-threatening, genetic disorder.
He is the son of Deeside-based North Wales Police sergeant Dave Smith, from Broughton, who has spent 17 years policing within the force. He previously ran Wrexham Police FC - which raised £70,000 for charitable causes.
Dave and his wife Siobhan are aiming to raise £1.5 million to help cover the cost of the treatment Rupert will face over the coming months - which will take place abroad. They are also looking to help fund research towards finding a cure for AHC.
The JustGiving page has so far raised over £163,000 and can be accessed via https://shorturl.at/UTAfG.
The latest show of support for Rupert, who is eight months old, took place at Everton's 1-0 loss to Manchester United at the Hill Dickinson Stadium last night (February 23).
The ground was lit up in the colours of the rainbow between 6pm and 7pm, as a nod to Rupert’s Rainbow, the name of the awareness and fundraising campaign launched to help Rupert.
His dad David, who is an Everton fan, also urged fans attending the game to clap on the 7th minute (as Rupert was diagnosed at seven months old) to show that - despite his ultra-rare, life-threatening condition - he isn't alone.
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The family hailed the occasion as 'truly incredible' with Rupert's dad Dave, his uncle and his grandad all attending the game.
They added: "Rupert couldn’t go to the stadium last night, it would have been too much for him, but his daddy, grandad and uncle were there to represent Rupert’s Rainbow
"Seeing the Everton stadium light up for our baby boy was truly incredible. A moment we’ll never forget. Even his Liverpool FC supporting uncle (nobody’s perfect) was impressed.
"Thank you for standing with Rupert and helping raise awareness of this ultra-rare condition. It means everything to us."